From a 70 Year Old JP w/Polio
If you have Post polio Syndrome, be very careful with your doctors. I was diagnosed in 1987. The neurologist was very knowledgeable. Then came a period of 20 years when every doctor I saw simply blew smoke. They took my lead and I was an idiot and paid their fees. I told them and they said, "uh Huh. Of course." When I became patient at the University of Texas Medical Branch in Galveston, the first two neurologists eagerly told me that they were ignorant. The doctor who did the electromyography knew everything. The neurolgist I saw last knew nothing and said so. That's okay, I know a lot. PS: I no longer say, "I HAD polio in 1951". I say, "I HAVE polio." The neuropathy and atrophy are evidence that this is never going away. So, From JP,
grill your doctors. Make sure that they know something before taking their advice.